The first WPD 2005 meeting took place on 19 and 20 April 2005
in Amsterdam. 28 patient associations around the world were
present and fully motivated to discuss and exchange ideas
about the new activities for WPD 2005.
meeting started with an update on WPD 2004 followed by the
presentation of the official WPD sponsors and the goals &
aims for 2005. The next day the group exchanged ideas and
revealed their plans for WPD 2005. After this there were several
interesting presentations on the importance of the lobbying
The materials and resources needed for WPD 2005 were discussed
at the meeting in Amsterdam. Materials and resources used
so successfully in 2004 are currently being updated for WPD
2005. The WPD Steering Committee are also considering several
proposed merchandising ideas to help support WPD 2005, including
items of clothing in WPD colors.
updated materials and resources, the WPD 2005 Communication
Kit, will be sent out on 30 June and will consist of:
tape of the WPD animation
Full artwork and press-ready PDF of posters and leaflets
of the Branding Guide
The lobbying slides
patient associations were advised during the meeting in Amsterdam
that they should only go to the affiliates of the international
sponsors to have these materials produced.
Very many thanks to Acció Psoriasi, Spain, and Danmarks
Psoriasis Förening, Denmark for their Action Planners
Psoriasis Day 2005 - Acció Psoriasi
in our magazine, website, forum and chatroom
in pharmacies and hospitals
Mailing to mass media
Mailing to mass media
Mailing to mass media
and radio interviews
in the Acció Psoriasi chatroom
conference in Madrid: 12:00
meeting in Madrid: 17:00 To be opened by the Health Minister
Psoriasis Day 2005 - Danmarks Psoriasis Förening
of our magazine, Psoriasis News
of a newspaper with articles on 14 different people from
the 14 counties of Denmark
Psoriasis Förening Bus starts journey around Denmark,
stopping in the 14 counties where various activities
are planned including:
with the 14 people featured in the newspaper
consultations where the public can get a diagnosis
from a dermatologist or a rheumatologist
- 29 October
at Copenhagen City Hall
dermatologists and rheumatologists will speak on WPD
and the future for patients with psoriasis
Once we have received your feedback on what you are planning
to do to mark WPD 2005, a calendar will be produced showing
events that are going to take place around the world. Send
us your Action Planner and look out for the calendar in the
We have great news in that Michèle Corvest, President
of the Association pour la Lutte contre le Psoriasis, Parc
du Bondon, France recently addressed Wyeth affiliates to raise
awareness of WPD and the job that patient associations do
in helping to improve the lives of people with psoriasis and
Great ideas can be found from within the ranks of the WPD
members! Long standing organizations are able to offer advice
on many ways of attracting sponsors. Finding the right sponsors
is not easy; persistence, perseverance and tact will keep
you on the right track.
An important aspect of the meeting in Amsterdam was the issue
of lobbying. The question "Is it the job of a patient
association to lobby politicians?" was raised. Everybody
agreed that patient associations should undertake to lobby,
where possible, both the media and politicians.
were several excellent presentations given at the Amsterdam
meeting. The first presentation was by Jan Monsbakken, on
the principles and concepts of lobbying. Sheri Decker followed
with a case study on how the principles of lobbying can be
applied to the psoriasis patient associations. The session
was rounded up by Ron Hayen (Wyeth, Official WPD Sponsor)
on the importance of using health economics information in
the lobbying process.
from these presentations will be included in the WPD Communication
tips shared at the meeting include:
a famous/well-known person in order to generate interest.
on the key journalists and media outlets - if they pick
up the story, others will follow.
big countries it is quite difficult to reach the mass media,
focus on the regional media (local TV channels etc.) and
pick the principal outlets.
health economics/financial data when lobbying the media
and the politicians.
well-prepared, precise, professional, and polite. If you
persevere it will pay off!
For the forthcoming issues, we want to hear what you have
to say. Tell us your story; let us know what your plans are
to mark World Psoriasis Day 2005 and how your planned activities
are progressing. Please send your feedback either by e-mail
firstname.lastname@example.org or via our online feedback
Issue 3 - World Psoriasis Day e-bulletin:
the new look of the WPD posters and leaflets and read more
about how the activities are progressing in various countries.
more information, stories and events from around the world
in the lead up to World Psoriasis Day.