following represents a snapshot of facts and figures related
to the WPD initiative:
of countries now supporting World Psoriasis Day: 42
Number of patient associations supporting World Psoriasis
Number of unique hits on the World Psoriasis Day website:
Number of people who have signed up to receive the World
Psoriasis Day e-bulletin: 158
Number of people who have signed the World Psoriasis Day
patient associations are joining the World Psoriasis Day campaign
every day, so log on to www.worldpsoriasisday.com
for continued updates on the countries and patient associations
involved in World Psoriasis Day, as well as details of local
events occurring worldwide and background information about
Belgium, World Psoriasis Day is being actively supported by
two patient associations: Absl GIPSO in Liège and its
sister organisation Psoriasisstichting in Lochristi. On 29
October, the Belgian psoriasis associations will place exhibition
stands in some of the largest hospitals in Belgium to help
educate the general public about psoriasis. As well as the
opportunity to talk to psoriasis patients, nurses and psoriasis
specialists, these stands will offer visitors the chance to
release a balloon and win a prize!
travelling on the subway in Berlin on 29 October 2004 should
see the World Psoriasis Day advertisement below. The German
psoriasis association Psoriasis Selbsthilfe Arbeitsgemeinshaft
e. V has arranged for 30-second World Psoriasis Day advertisements
to appear on monitors on board subway trains.
course, it is not just large countries which are participating
in World Psoriasis Day. The Icelandic Psoriasis Association
SPOEX has secured spots on all four of Iceland's TV channels
for a World Psoriasis Day advertisement.
you involved in any of the events listed above? Are you holding
similar events in your country to raise awareness of psoriasis
and celebrate World Psoriasis Day 2004? Email us on email@example.com
and tell us more!
his recent recruitment to the World Psoriasis Day Steering
Committee, Lars Ettarp, President of the International Federation
of Psoriasis Associations (IFPA), will welcome an international
audience of medical and consumer journalists to a media briefing
in Prague on 27 October. The briefing will include presentations
from patient association representatives and medical experts.
In addition the results of an international survey examining
the level of awareness of psoriasis amongst more than 5,000
members of the public will be presented and circulated. These
results will also be made available shortly afterwards to
patient associations for them to use in their ongoing campaign
to raise awareness and dispel myths about psoriasis.
Log on to the World
Psoriasis Day website for further details of the agenda
and to download a media registration form. Even if you are
not in Prague on 27 October, you can join in: simply use this
form to register for the live webcast of the event.
reported in the last issue of the World Psoriasis Day e-news
bulletin, the World Psoriasis Day website now features an
online World Psoriasis Day Proclamation, which sets out the
rights of psoriasis patients to enjoy the best possible medical
care and quality of life without experiencing discrimination
or exclusion as a result of their skin.
367 electronic signatures gathered already from as far afield
as Kenya, Hong Kong and Mexico, the Proclamation will provide
a powerful tool for Patient Associations in the fight to show
healthcare decision makers (and the media) what needs to be
done to improve psoriasis care for people with psoriasis all
over the world. The signatures will be made available to any
patient association upon request.
on to the World
Psoriasis Day website to read the Proclamation and add
your name to the list in time for World Psoriasis Day on 29
World Psoriasis Day itself, we will report on stories and
events from around the world
us on firstname.lastname@example.org
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of this e-news bulletin, or to send us your pictures and stories.
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